Friends of FSH ResearchIn my quest to help out as many local non-profits as possible, I am helping to promote them by giving them free listings on the Eastside Business Directory, as well as publicizing them here at

The Friends of FSH Research was recommend to me via Ted Marshall on Facebook and he noted his recommendation was via Terry Elsas Colella.  You can see the Friends of FSH Research listing on the Eastside Business Directory, but here is some    additional information and a direct link to this great organization:

“FiSHing for a Cure” Together we are making a difference – by stimulating new interest in FSH research & providing the essential funding for pilot projects this research is moving forward.


Mission & Purpose Statements: “Friends of FSH Research a 501 (c) (3) organization is working to impact the lives of those affected by FSH Muscular Dystrophy by financially supporting FSHD research.”

Facioscapulohumeral Dystrophy, or FSHD, is a degenerative muscular disease for which there is no treatment or cure.

Purpose Statements

1. To encourage, promote and fund increased scientific and clinical research of Facioscapulohumeral Dystrophy, or FSHD.

2. To conduct fund raising efforts and solicit grants and contributions from individuals, private foundations and others, in order to sponsor research to help advance the study and understanding of FSHD, with the goal of identifying treatment and a cure for the disease.

3. To disseminate information about FSHD and encourage additional public support for FSHD research by raising public awareness of the need for more research funding.

Company Overview

Charity founded in June 2004.
Goal to stimulate new interest in research of Facioscapulohumeral Muscular Dystrophy (FSH, also known as FSHD)
Mission to support research in order to find a treatment or cure for FSHD


Friends of FSH Research was founded in 2004 by a Kirkland family following the diagnosis of their son with Facioscapulohumeral Muscular Dystrophy. (also known as FSH or FSHD) Since there was insufficient FSH research being done which would help to find a treatment or cure for this type of Muscular Dystrophy, the Friends of FSH Research was organized. The mission of this organization is to stimulate
& fund new FSH research; their ultimate goal is finding a treatment or cure for this progressive condition.

General Information

*Grassroots Organization
*Stimulating & Supporting FSHD research
*Supported by Donations
*Annual Charity Event
*Welcomes Donations

You can visit the Friends of FSH Research Facebook right here.

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