On Sunday, October 21st, 2012 the Myasthenia Gravis Foundation of America will hold its second annual MG Walk in Seattle. The MG Walk, now in its second year nationally, is the signature awareness and fundraising campaign for the MGFA. It is designed to provide hope for the thousands of families forced to face the challenges caused by myasthenia gravis. This effort will raise funds to help the MGFA continue its mission to fund research and assist those living with MG through a truly inspirational day.
While the fundraising is critical, the MG Walk is also about giving myasthenia gravis a voice, building community and empowering people whose lives have been impacted by MG. Here are just two of their stories:
• The Pacific Northwest MG Walk will honor Betty Andrews, long time Chapter volunteer and the Chapter Treasurer for the last 15 years. Betty lost her courageous battle to MG this past February and she is sorely missed by all involved. Betty eagerly participated in the inaugural MG Walk in 2011; family and friends have joined together for the 2012 campaign to form “Team Betty” and will participate in her honor while recognizing all she did for the fight against myasthenia gravis.
• Lyla Patterson was diagnosed with Ocular Myasthenia Gravis at age 6. At age 8 her disease has been reclassified at Generalized Myasthenia Gravis. Typically, when you think of MG, you think about diagnosis late in life – onset after age 50 – but as the MG Walk has shown, many youth are affected by MG as well. Lyla is one of many families affected by pediatric MG that have found the walk to be a way to fight back and give their children a deeper sense of empowerment. Called Amazing Lyla Bug by her family, Lyla is a strong beautiful little girl who brightens up the room – she will be walking with her family.
If you would like run a story featuring either of these walkers, or connect with another, we would be thrilled to make this connection for you. This is a story worth telling about your neighbors in Seattle affected by this little known but devastating disease.
Myasthenia Gravis affects people of any age, race or gender. The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups, and can affect muscles that control eye movements, eyelids, chewing, swallowing, coughing and facial expression as well as the arms and legs. MG can also affect breathing. The MGFA is the only national volunteer health agency dedicated solely to the fight against myasthenia gravis and to serving patients with MG. MGFA has chapters around the US serving patients, their families and caregivers through support groups and programs. Each chapter is independently managed and each shares the MGFA vision of a world without MG.
With monies raised from the MG Walk, the MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Date: Sunday, October 21st, 2012
Time: Check-In/Registration: 9:00 a.m. Walk Starts: 10:00 a.m.
Location: Seward Park, Seattle, WA
Choose from a 1-mile or 3-mile route
Price: Registration is Free! Fundraising is encouraged.
Phone: 1-855-MGWALKS (855-649-2557)